Monthly Archives: June 2016

Dark and Difficult Times

Posted on June 14, 2016 by saussi77

Before our Monday meeting at work this morning, a coworker and I exchanged pleasantries in the bathroom while we washed our hands. I asked her how her weekend was, and she asked about mine. As I looked up to answer, … Continue reading →

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Confirmation

Posted on June 10, 2016 by saussi77

When Gracie was just 3, we made a trip to New York to see a doctor. This particular doctor was THE doctor to see for kids who don’t feel pain. She specialized in dysautonomia, or dysfunction of the autonomic nerves, … Continue reading →

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Research

Posted on June 7, 2016 by saussi77

Today is an important day. It’s my parents’ 52nd anniversary. It’s also the first day that Gracie’s 1:1 from school watched the kids—she is our nanny for the summer. And, it’s the day I got an email from the genetic research … Continue reading →

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Supplies

Posted on June 1, 2016 by saussi77

A few weeks ago, I spent hours on the phone with people at a medical supply company and Gracie’s insurance company trying to get one of her expensive wound care supplies covered. This particular product is pretty cool. It is … Continue reading →

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