Author Archives: saussi77

Resolution?

Ah, the life of a chronically ill person. We spend our days dealing with doctors and insurance companies and therapists and special teachers, and even if these people are not pleasant or do not do what we need them to … Continue reading

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The Battle of the Doctors

Pre-COVID, it was a thing that Grace got sick before, during, or after every single vacation. During COVID, that didn’t really happen, because we were stuck at home and I was unemployed and we just didn’t do the vacation thing. … Continue reading

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IEP

Parents of school-age special needs kids know what this title means and likely have a visceral reaction to the three little letters. An IEP is an individualized educational program, a/k/a the legal document that guides a school district’s provision of … Continue reading

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Accommodating

Today is the first day of school—and Grace’s first day ever at this remote school. There have been several technical difficulties throughout the day. We can’t get to her classes from her district-issued device, so she’s using her personal computer. … Continue reading

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Hello Darkness, My Old Friend

The lyrics to the Simon & Garfunkel song, “The Sound of Silence,” have a special meaning because of Art Garfunkel’s best friend, Sanford “Sandy” Greenberg. Sandy unexpectedly lost his vision while in college with Garfunkel, and Garfunkel helped him regain … Continue reading

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Back to School

It’s August, and that means it’s back to school time! Although we all enjoyed homeschooling last year (well, maybe “enjoyed” is a strong word), the big kids are going back to public school for this coming school year. Jackson, who … Continue reading

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Vaccines, Again

A couple years ago, I wrote a blog post about vaccines and how becoming vaccinated protects those among us who are unable to be vaccinated. Since then, as we all know, the plague hit. I feel like it’s time to … Continue reading

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Healthy

Last year was such a difficult year that, when people would ask what good things happened, I couldn’t think of anything. But after some reflection, it turns out there were some good things that came out of the pandemic. First … Continue reading

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The Un-Resume

Since I was laid off last June, I have applied for several jobs, but only got an interview for one. After that interview, I realized that it will take a special employer to hire me. I need to be fully … Continue reading

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Lucky

Lately, several people have pointed out that our family was hit particularly hard by the pandemic. We certainly have had a string of misfortunes, no doubt about that, but it’s hard for me to accept that we were hit hard … Continue reading

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