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Author Archives: saussi77
A Thousand Words
Sometimes looks can be deceiving. Today was picture day at Grace’s school. She does remote school so picture day meant we had to go to the physical school building and have her picture taken. Grace has been sick for about … Continue reading
Resolution?
Ah, the life of a chronically ill person. We spend our days dealing with doctors and insurance companies and therapists and special teachers, and even if these people are not pleasant or do not do what we need them to … Continue reading
The Battle of the Doctors
Pre-COVID, it was a thing that Grace got sick before, during, or after every single vacation. During COVID, that didn’t really happen, because we were stuck at home and I was unemployed and we just didn’t do the vacation thing. … Continue reading
Posted in Uncategorized
Tagged hospital, infection, infectious disease, orthopedist, vacation
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IEP
Parents of school-age special needs kids know what this title means and likely have a visceral reaction to the three little letters. An IEP is an individualized educational program, a/k/a the legal document that guides a school district’s provision of … Continue reading
Accommodating
Today is the first day of school—and Grace’s first day ever at this remote school. There have been several technical difficulties throughout the day. We can’t get to her classes from her district-issued device, so she’s using her personal computer. … Continue reading
Posted in Uncategorized
Tagged accommodation, IEP, school, special education, special needs, vision loss
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Hello Darkness, My Old Friend
The lyrics to the Simon & Garfunkel song, “The Sound of Silence,” have a special meaning because of Art Garfunkel’s best friend, Sanford “Sandy” Greenberg. Sandy unexpectedly lost his vision while in college with Garfunkel, and Garfunkel helped him regain … Continue reading
Back to School
It’s August, and that means it’s back to school time! Although we all enjoyed homeschooling last year (well, maybe “enjoyed” is a strong word), the big kids are going back to public school for this coming school year. Jackson, who … Continue reading
Vaccines, Again
A couple years ago, I wrote a blog post about vaccines and how becoming vaccinated protects those among us who are unable to be vaccinated. Since then, as we all know, the plague hit. I feel like it’s time to … Continue reading
Healthy
Last year was such a difficult year that, when people would ask what good things happened, I couldn’t think of anything. But after some reflection, it turns out there were some good things that came out of the pandemic. First … Continue reading
The Un-Resume
Since I was laid off last June, I have applied for several jobs, but only got an interview for one. After that interview, I realized that it will take a special employer to hire me. I need to be fully … Continue reading
Amazing Gracie 