Tag Archives: infectious disease

Resolution?

Posted on July 9, 2022 by saussi77

Ah, the life of a chronically ill person. We spend our days dealing with doctors and insurance companies and therapists and special teachers, and even if these people are not pleasant or do not do what we need them to … Continue reading →

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The Battle of the Doctors

Posted on June 26, 2022 by saussi77

Pre-COVID, it was a thing that Grace got sick before, during, or after every single vacation. During COVID, that didn’t really happen, because we were stuck at home and I was unemployed and we just didn’t do the vacation thing. … Continue reading →

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Penance

Posted on September 30, 2020 by saussi77

After a week of sickness burning through our house like this year’s ever-present wildfires, Grace revisited the pediatrician today for another round of bloodwork. It was at her infectious disease doctor’s behest; he does not have the capability to do … Continue reading →

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Attrition

Posted on May 16, 2020 by saussi77

The fall of 2019 was a difficult time. In late August, Grace came home from school one day with a red and swollen thumb. Due to the redness and heat, we started her on antibiotics, but the thumb didn’t improve. … Continue reading →

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Gracie’s Bill

Posted on March 21, 2018 by saussi77

It seems that the time between my posts gets longer and longer. There is a good reason for that. In addition to being a pregnant mom and working two jobs, I have a few side projects going on. One of … Continue reading →

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Consequences

Posted on September 27, 2017 by saussi77

For every action, there is an equal and opposite reaction. -Sir Isaac Newton, Newton’s Third Law of Physics Today, class, we’re going to talk about physics. Okay, no, not really – we’re going to talk about microbiology as it pertains … Continue reading →

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Unfair

Posted on September 13, 2017 by saussi77

Humans have an internal compass for justice—at least, most of us do. We learn as young children to abhor injustice. As we mature, we learn the unpleasant truth that things sometimes are deeply unjust and beyond our control. Gracie rarely … Continue reading →

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The White Prison

Posted on June 16, 2017 by saussi77

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading →

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Burned

Posted on September 28, 2016 by saussi77

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading →

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Bridges

Posted on August 24, 2016 by saussi77

Sometimes, you have to stick up for your kid, even if it means burning bridges. We have had a few bridge fires throughout this special needs journey. The first one was probably with the infectious disease department at Children’s Hospital; … Continue reading →

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