Tag Archives: infectious disease

Gracie’s Bill

It seems that the time between my posts gets longer and longer. There is a good reason for that. In addition to being a pregnant mom and working two jobs, I have a few side projects going on. One of … Continue reading

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Consequences

For every action, there is an equal and opposite reaction. -Sir Isaac Newton, Newton’s Third Law of Physics Today, class, we’re going to talk about physics. Okay, no, not really – we’re going to talk about microbiology as it pertains … Continue reading

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Unfair

Humans have an internal compass for justice—at least, most of us do. We learn as young children to abhor injustice. As we mature, we learn the unpleasant truth that things sometimes are deeply unjust and beyond our control. Gracie rarely … Continue reading

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The White Prison

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading

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Burned

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading

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Bridges

Sometimes, you have to stick up for your kid, even if it means burning bridges. We have had a few bridge fires throughout this special needs journey. The first one was probably with the infectious disease department at Children’s Hospital; … Continue reading

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Well

We have been very busy these past few weeks — at least, that’s my excuse for not writing more. Grace is averaging two doctor appointments per week, one at infectious disease and one at some other doctor (ortho, GI, etc.). … Continue reading

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