Tag Archives: doctors

The White Prison

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading

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Special

These past few weeks have been filled with specialist appointments. We saw ortho a few times (seeing her again on the 15th, and who knows how often after that), Grace had her MRI under anesthesia, her annual ophthalmology appointment was … Continue reading

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Suckville

I don’t usually write things that are all about me – I’m sure my personality comes through with what I write but mostly I don’t like to share too many of my deep, dark secrets. But today, I’ll break my silence … Continue reading

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Well

We have been very busy these past few weeks — at least, that’s my excuse for not writing more. Grace is averaging two doctor appointments per week, one at infectious disease and one at some other doctor (ortho, GI, etc.). … Continue reading

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Loss

When Gracie was at the school for blind kids, she had a classmate who also had significant medical needs in addition to being blind. I always felt extra-connected to her mom, because we both knew what it was to have … Continue reading

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Doctors

We got a letter yesterday informing us that one of our very favorite doctors (Gracie’s infectious disease specialist) is no longer at her practice and will now be working at a different hospital with mostly adult patients. My first thought … Continue reading

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Advocate

One of the things about being a special needs parent that you don’t hear about right away is how you have to become your child’s advocate. You know your child best, so you know when something is not right, and … Continue reading

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