Tag Archives: blindness

Hoppy Easter!

Today is Easter, and the kids have been enjoying the day. I mean, who wouldn’t love candy for breakfast, amiright?! Gracie woke up first, at around 6:45. I helped her go to the bathroom, and while we were in there … Continue reading

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Ballet

Each Friday, Gracie has ballet class. This is no small feat for someone with ataxia and peripheral vision loss! She always wanted to be a ballerina, but her disabilities made it nearly an impossible dream. But then, last year, someone … Continue reading

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Dreaming

I had a dream last night about Anchor Center, the preschool for blind kids that was so awful to Gracie. In my dream, the woman I saw at Starbucks a few weeks ago (in real life) held a ceremony to … Continue reading

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Playgrounds

I used to shudder to think of playgrounds. Between Gracie’s ataxia and peripheral vision loss, those tall structures with the mysteriously missing sides were the stuff of nightmares. Not for Gracie, of course — like every kid, she loves playgrounds. … Continue reading

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Dichotomy

We have been CRAZY busy around here. It’s the end of the school year, the end of Gracie’s year in the public preschool at the non-inclusive school, and we are busy trying to prepare everything for her to start kindergarten … Continue reading

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Sometimes

Sometimes I think I can’t do any more wound care. Sometimes I wonder what would happen if I just left those dressings on one more day. Sometimes I just want to scream when I see a fresh bite wound on … Continue reading

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Retinitis Pigmentosa

Retinitis Pigmentosa is a blanket term for a group of eye disorders that cause gradual, progressive vision loss. It usually starts in adolescence and affected individuals are legally blind by age 40. Generally, people with RP lose their night vision … Continue reading

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