Tag Archives: blindness

Hello Darkness, My Old Friend

Posted on August 13, 2021 by saussi77

The lyrics to the Simon & Garfunkel song, “The Sound of Silence,” have a special meaning because of Art Garfunkel’s best friend, Sanford “Sandy” Greenberg. Sandy unexpectedly lost his vision while in college with Garfunkel, and Garfunkel helped him regain … Continue reading →

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A Vision of the Future

Posted on May 19, 2020 by saussi77

When Gracie was younger, she would bristle at being called “blind.” She would adamantly reject the term, saying instead that she could see just fine. Although she was born with only about 10% of normal vision, it was all she’d … Continue reading →

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Trip or Treat

Posted on November 1, 2018 by saussi77

Last night was Halloween—I hope all of you had fun and enjoyed the festivities. I know that my kids sure did! It was Elliot’s first Halloween, and he was tuckered out by all of the being carried around and making … Continue reading →

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Hoppy Easter!

Posted on April 16, 2017 by saussi77

Today is Easter, and the kids have been enjoying the day. I mean, who wouldn’t love candy for breakfast, amiright?! Gracie woke up first, at around 6:45. I helped her go to the bathroom, and while we were in there … Continue reading →

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Ballet

Posted on January 23, 2016 by saussi77

Each Friday, Gracie has ballet class. This is no small feat for someone with ataxia and peripheral vision loss! She always wanted to be a ballerina, but her disabilities made it nearly an impossible dream. But then, last year, someone … Continue reading →

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Dreaming

Posted on January 2, 2016 by saussi77

I had a dream last night about Anchor Center, the preschool for blind kids that was so awful to Gracie. In my dream, the woman I saw at Starbucks a few weeks ago (in real life) held a ceremony to … Continue reading →

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Playgrounds

Posted on September 15, 2015 by saussi77

I used to shudder to think of playgrounds. Between Gracie’s ataxia and peripheral vision loss, those tall structures with the mysteriously missing sides were the stuff of nightmares. Not for Gracie, of course — like every kid, she loves playgrounds. … Continue reading →

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Dichotomy

Posted on May 19, 2015 by saussi77

We have been CRAZY busy around here. It’s the end of the school year, the end of Gracie’s year in the public preschool at the non-inclusive school, and we are busy trying to prepare everything for her to start kindergarten … Continue reading →

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Sometimes

Posted on April 15, 2015 by saussi77

Sometimes I think I can’t do any more wound care. Sometimes I wonder what would happen if I just left those dressings on one more day. Sometimes I just want to scream when I see a fresh bite wound on … Continue reading →

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Retinitis Pigmentosa

Posted on March 31, 2015 by saussi77

Retinitis Pigmentosa is a blanket term for a group of eye disorders that cause gradual, progressive vision loss. It usually starts in adolescence and affected individuals are legally blind by age 40. Generally, people with RP lose their night vision … Continue reading →

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