Tag Archives: painless

Feelings

When Grace was little, we used to wonder what she could and could not feel. Doctors would ask me about her sensation and I would give my best guess, but sometimes I simply could not answer. We would discuss how … Continue reading

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Slap in the Face

Most of the time, we barely notice Gracie’s disabilities. They are part of her, and part of our everyday life, and so much part of the routine. Once in a while, though, they reach out and slap us in the … Continue reading

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Dem Bones

Facebook keeps showing me memories of late June hospital stays from the past few years. It’s funny, Grace does tend to be hospitalized at the same time of year over and over again. Last year, it was her knee. We … Continue reading

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The Story, Part 2

A long time ago, I wrote “The Story She Hates to Hear Me Tell” about how we figured out Gracie couldn’t feel pain. I never wrote the rest of the story, though, and I suppose now is as good a … Continue reading

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Suckville

I don’t usually write things that are allĀ about me – I’m sure my personality comes through with what I write but mostly I don’t like to share too many of my deep, dark secrets. But today, I’ll break my silence … Continue reading

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Summertime

And the living is easy… Ah, summer bliss. The frenetic pace of the last few months has melted away in the warm summer. Lazy days are here. The kids are getting the full glory of summertime. They can sleep in … Continue reading

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Sometimes

Sometimes I think I can’t do any more wound care. Sometimes I wonder what would happen if I just left those dressings on one more day. Sometimes I just want to scream when I see a fresh bite wound on … Continue reading

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Fingers

About 100 times a day, I tell Gracie to get her fingers out of her mouth. Each time I see her chomping on a finger, it makes my heart beat a little faster. She has done some serious damage to … Continue reading

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