Tag Archives: osteomyelitis

Attrition

Posted on May 16, 2020 by saussi77

The fall of 2019 was a difficult time. In late August, Grace came home from school one day with a red and swollen thumb. Due to the redness and heat, we started her on antibiotics, but the thumb didn’t improve. … Continue reading →

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This Hospital Life

Posted on April 30, 2016 by saussi77

The times between Gracie’s hospital stays are getting longer and longer. Gone are the days when she spent more time on antibiotics than off. She is getting stronger. Before tonight, the last time she was hospitalized was last September—over seven … Continue reading →

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The Story, Part 2

Posted on January 10, 2016 by saussi77

A long time ago, I wrote “The Story She Hates to Hear Me Tell” about how we figured out Gracie couldn’t feel pain. I never wrote the rest of the story, though, and I suppose now is as good a … Continue reading →

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Cha Cha Cha

Posted on August 29, 2015 by saussi77

I knew when I wrote that last post I was playing with fire — mentioning how Gracie had been hospitalized right around her birthday every year since the year she turned two. True, she doesn’t have a bone infection this … Continue reading →

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Four Months

Posted on February 27, 2015 by saussi77

Gracie’s last dose of antibiotics was on October 17. She has made it four months and about a week, which is either her longest stretch ever or her second-longest. When she was 8 months old, she got RSV, which turned … Continue reading →

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Doctors

Posted on January 22, 2015 by saussi77

We got a letter yesterday informing us that one of our very favorite doctors (Gracie’s infectious disease specialist) is no longer at her practice and will now be working at a different hospital with mostly adult patients. My first thought … Continue reading →

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Here we go again…

Posted on November 19, 2014 by saussi77

Well, $#!+. We got some bad news today. About a month ago on a Friday, Gracie’s hand mysteriously became swollen. I had put her glove on at 10 am and the hand was fine. I took the glove off at … Continue reading →

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Giving the Finger

Posted on September 13, 2014 by saussi77

Gracie gave her doctor the finger, literally and now figuratively as well. She had the tip of her finger amputated last Friday in order to rid the bone of infection. Today, we saw the wound for the first time. The flat … Continue reading →

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White is the New Orange is the New Black

Posted on September 2, 2014 by saussi77

Grace has committed a crime. She was convicted of being too sick to live in the outside world and her sentence is a week-long confinement in a medium-security facility. I was sentenced as the co-conspirator. We are forced to live in … Continue reading →

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The One

Posted on August 31, 2014 by saussi77

This latest hospital adventure has prompted me to think scary and unpleasant thoughts about Gracie’s future. She is barely 4 – she just had a birthday – and antibiotics are failing her. Her latest wicked infection is responding to the medicine, … Continue reading →

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