Monthly Archives: February 2015

Four Months

Gracie’s last dose of antibiotics was on October 17. She has made it four months and about a week, which is either her longest stretch ever or her second-longest. When she was 8 months old, she got RSV, which turned … Continue reading

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Mourning

This past weekend, Gracie and I attended the funeral of the little boy whose sister goes to the school that kicked Gracie out last fall. It was heart-wrenching; those poor parents look haggard, as to be expected, and there is … Continue reading

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Loss

When Gracie was at the school for blind kids, she had a classmate who also had significant medical needs in addition to being blind. I always felt extra-connected to her mom, because we both knew what it was to have … Continue reading

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Puddles

Gracie is doing amazingly well lately. In fact, she’s thriving. She is doing great at school, she is learning to write and draw (she drew her first-ever stick figure family the other day), and she is getting stronger and stronger. … Continue reading

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Brave

We had our first doctor visit of 2015 yesterday. I had texted with Gracie’s pediatrician Saturday because the wound on Gracie’s index finger, where she pulled out her little stump of a fingernail, started to look like it had exposed … Continue reading

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