Tag Archives: infection

Hungover

Posted on June 20, 2017 by

I have used the term “hospital hangover” before. It’s a feeling of being worn down, a little depressed, completely frazzled, and unreasonably exhausted. It takes days to shake the hangover after a hospital stay. The longer and more stressful the … Continue reading →

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The White Prison

Posted on June 16, 2017 by

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading →

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Slap in the Face

Posted on April 5, 2017 by

Most of the time, we barely notice Gracie’s disabilities. They are part of her, and part of our everyday life, and so much part of the routine. Once in a while, though, they reach out and slap us in the … Continue reading →

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Fever

Posted on March 3, 2017 by

You give me fever When you kiss me Fever when you hold me tight Fever in the morning Fever all through the night. I’m wishing I were writing a love song instead of a post about Gracie’s recurring fevers. Alas. … Continue reading →

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Burned

Posted on September 28, 2016 by

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading →

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3 a.m.

Posted on September 26, 2016 by

Baby, it’s 3 a.m. and I must be lonely… Whew, what a night! Not in the fun “let’s hook up after a night of drinking” way referenced in the song, either. Gracie was admitted again yesterday. We tried to avoid … Continue reading →

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Birthday Girl

Posted on September 1, 2016 by

Gracie turned 6 a few days ago. We celebrated at home with her favorite dinner—steak, cheesy fiesta potatoes (my homemade version of her favorite Taco Bell delicacy), and strawberries—and enjoyed watching Gracie’s glee as she opened her presents. She didn’t get … Continue reading →

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