Category Archives: Uncategorized

Hungover

Posted on June 20, 2017 by

I have used the term “hospital hangover” before. It’s a feeling of being worn down, a little depressed, completely frazzled, and unreasonably exhausted. It takes days to shake the hangover after a hospital stay. The longer and more stressful the … Continue reading →

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The White Prison

Posted on June 16, 2017 by

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading →

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Hoppy Easter!

Posted on April 16, 2017 by

Today is Easter, and the kids have been enjoying the day. I mean, who wouldn’t love candy for breakfast, amiright?! Gracie woke up first, at around 6:45. I helped her go to the bathroom, and while we were in there … Continue reading →

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Slap in the Face

Posted on April 5, 2017 by

Most of the time, we barely notice Gracie’s disabilities. They are part of her, and part of our everyday life, and so much part of the routine. Once in a while, though, they reach out and slap us in the … Continue reading →

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Fever

Posted on March 3, 2017 by

You give me fever When you kiss me Fever when you hold me tight Fever in the morning Fever all through the night. I’m wishing I were writing a love song instead of a post about Gracie’s recurring fevers. Alas. … Continue reading →

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Appropriate

Posted on January 12, 2017 by

Today, the United States Supreme Court heard oral arguments in a special education case, Endrew F. v. Douglas County Public Schools. In that case, the Supreme Court is tasked with deciding whether the student, Endrew F., received a free and … Continue reading →

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Perseverence

Posted on December 9, 2016 by

Right before Thanksgiving, Gracie was lamenting that she’d never seen a movie in the movie theater. I had never taken her because it’s dark and loud and requires sitting still for two hours—any one of those things is usually too … Continue reading →

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