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Category Archives: Uncategorized
2020—Year in Review
I feel like a train wreck is a suitable image for 2020. Oh, what a year! None of us will forget this one for a very long time. We all know the global craziness—the fires in Australia, the police killings … Continue reading
Reflections
Who is that girl I seeStaring straight back at me?Why is my reflectionSomeone I don’t know? It turns out the kids do well with school when Disney music is playing. The above lyrics are from Mulan, before the village girl … Continue reading
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Penance
After a week of sickness burning through our house like this year’s ever-present wildfires, Grace revisited the pediatrician today for another round of bloodwork. It was at her infectious disease doctor’s behest; he does not have the capability to do … Continue reading
Compromised
I saw a meme recently that said, “The reason parents are so stressed with the pandemic is we are constantly having to choose between our children’s physical and mental health.” Those words are painfully true. But for most, it’s not … Continue reading
Origins
I don’t remember how much of what happened last fall I posted here—not much, I think—but I’m sure I haven’t written about this yet. But, after my last post about how Grace has so much anxiety, it seemed fitting to … Continue reading
Hard Truth
I’ve been thinking about writing an honest post for a while. But honestly, everything is so depressing and hard that I haven’t really wanted to share our truth. And I don’t want or need anyone’s sympathy; life is hard for everyone these days and we will get through it no matter what. Continue reading
Isolation
As schools across the country wind down for the summer, parents everywhere are lamenting their children’s loss of normalcy. Children and teachers alike are distraught that they were unable to say goodbye face-to-face, unable to hug their friends as they … Continue reading
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Tagged bacterial infection, infection, mental health, school, virus
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A Vision of the Future
When Gracie was younger, she would bristle at being called “blind.” She would adamantly reject the term, saying instead that she could see just fine. Although she was born with only about 10% of normal vision, it was all she’d … Continue reading
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Tagged blindness, peripheral vision, retinitis pigmentosa, vision
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Attrition
The fall of 2019 was a difficult time. In late August, Grace came home from school one day with a red and swollen thumb. Due to the redness and heat, we started her on antibiotics, but the thumb didn’t improve. … Continue reading
Posted in Uncategorized
Tagged cellulitis, hospital, infection, infectious disease, osteomyelitis
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