Recent Comments
Sharon on Attrition saussi77 on Feelings Sarah on Feelings The Great Discrimina… on The Story, Part 2 The Great Discrimina… on The Story She Hates to Hear Me…
Tag Archives: infection
The White Prison
It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading
Posted in Uncategorized
Tagged antibiotics, doctors, hospital, infection, infectious disease
Leave a comment
Slap in the Face
Most of the time, we barely notice Gracie’s disabilities. They are part of her, and part of our everyday life, and so much part of the routine. Once in a while, though, they reach out and slap us in the … Continue reading
Posted in Uncategorized
Tagged fever, infection, painless, painless wounds, wound care
Leave a comment
Fever
You give me fever When you kiss me Fever when you hold me tight Fever in the morning Fever all through the night. I’m wishing I were writing a love song instead of a post about Gracie’s recurring fevers. Alas. … Continue reading
Burned
We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading
3 a.m.
Baby, it’s 3 a.m. and I must be lonely… Whew, what a night! Not in the fun “let’s hook up after a night of drinking” way referenced in the song, either. Gracie was admitted again yesterday. We tried to avoid … Continue reading
Posted in Uncategorized
Tagged antibiotics, cellulitis, hospital, infection, insomnia
Leave a comment
Birthday Girl
Gracie turned 6 a few days ago. We celebrated at home with her favorite dinner—steak, cheesy fiesta potatoes (my homemade version of her favorite Taco Bell delicacy), and strawberries—and enjoyed watching Gracie’s glee as she opened her presents. She didn’t get … Continue reading
Guts ‘n’ Stuff
We have largely been looking forward to today’s appointment with the gastroenterologist. After three months of a strict gluten-free diet, we were anticipating an appointment where we would tell the doctor that it didn’t work, nothing changed, and could she … Continue reading
Posted in Uncategorized
Tagged celiac disease, colonoscopy, gastroenterology, gluten free diet, infection
5 Comments
Of MRIs and Fractures
Right now, Gracie is under anesthesia having an MRI of her spine. She went to sleep quickly and easily, breathing in the Skittles-scented anesthesia while I told her a story. She made it look easy. It’s not easy on us. … Continue reading
Dem Bones
Facebook keeps showing me memories of late June hospital stays from the past few years. It’s funny, Grace does tend to be hospitalized at the same time of year over and over again. Last year, it was her knee. We … Continue reading
Red Tape
Hello from the hospital. Yep, we’re still here, despite getting the doctor’s okay to go home two days ago. We are still here because insurance company employees don’t work on the weekend. Gracie has had many, many courses of antibiotics … Continue reading
Posted in Uncategorized
Tagged antibiotics, hospital, infection, insurance, red tape
Leave a comment
