Tag Archives: infection

The White Prison

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading

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Slap in the Face

Most of the time, we barely notice Gracie’s disabilities. They are part of her, and part of our everyday life, and so much part of the routine. Once in a while, though, they reach out and slap us in the … Continue reading

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Fever

You give me fever When you kiss me Fever when you hold me tight Fever in the morning Fever all through the night. I’m wishing I were writing a love song instead of a post about Gracie’s recurring fevers. Alas. … Continue reading

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Burned

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading

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3 a.m.

Baby, it’s 3 a.m. and I must be lonely… Whew, what a night! Not in the fun “let’s hook up after a night of drinking” way referenced in the song, either. Gracie was admitted again yesterday. We tried to avoid … Continue reading

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Birthday Girl

Gracie turned 6 a few days ago. We celebrated at home with her favorite dinner—steak, cheesy fiesta potatoes (my homemade version of her favorite Taco Bell delicacy), and strawberries—and enjoyed watching Gracie’s glee as she opened her presents. She didn’t get … Continue reading

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Guts ‘n’ Stuff

We have largely been looking forward to today’s appointment with the gastroenterologist. After three months of a strict gluten-free diet, we were anticipating an appointment where we would tell the doctor that it didn’t work, nothing changed, and could she … Continue reading

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Of MRIs and Fractures

Right now, Gracie is under anesthesia having an MRI of her spine. She went to sleep quickly and easily, breathing in the Skittles-scented anesthesia while I told her a story. She made it look easy. It’s not easy on us. … Continue reading

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Dem Bones

Facebook keeps showing me memories of late June hospital stays from the past few years. It’s funny, Grace does tend to be hospitalized at the same time of year over and over again. Last year, it was her knee. We … Continue reading

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Red Tape

Hello from the hospital. Yep, we’re still here, despite getting the doctor’s okay to go home two days ago. We are still here because insurance company employees don’t work on the weekend. Gracie has had many, many courses of antibiotics … Continue reading

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