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Category Archives: Uncategorized
Research
Today is an important day. It’s my parents’ 52nd anniversary. It’s also the first day that Gracie’s 1:1 from school watched the kids—she is our nanny for the summer. And, it’s the day I got an email from the genetic research … Continue reading
Supplies
A few weeks ago, I spent hours on the phone with people at a medical supply company and Gracie’s insurance company trying to get one of her expensive wound care supplies covered. This particular product is pretty cool. It is … Continue reading
The Haps
I wanted to write a post about my little ballerina, who is such an amazing dancer and did so well at her recital Sunday. She knew all the moves; the other girls were looking to her for what to do … Continue reading
Hot Hot HOT!
We have three different types of nerves in our bodies: motor, sensory, and autonomic. Motor nerves control movement. Sensory nerves control sensation. Autonomic nerves control the things we don’t think about—digestion, circulation, and body temperature, for example. Most of the … Continue reading
Leader of the PACK
A few days ago, we got a postcard from Gracie’s school, inviting us to an award ceremony. It said, “Your student will be receiving an award.” The next day, Gracie’s kindergarten teacher emailed to let me know she nominated Gracie for a … Continue reading
Mothers
Several times over the past few days, people have told me what a good mother I am. At the hospital, the ER doc told me I was a good mom just moments after she entered the room. (She actually said … Continue reading
Red Tape
Hello from the hospital. Yep, we’re still here, despite getting the doctor’s okay to go home two days ago. We are still here because insurance company employees don’t work on the weekend. Gracie has had many, many courses of antibiotics … Continue reading
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Tagged antibiotics, hospital, infection, insurance, red tape
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This Hospital Life
The times between Gracie’s hospital stays are getting longer and longer. Gone are the days when she spent more time on antibiotics than off. She is getting stronger. Before tonight, the last time she was hospitalized was last September—over seven … Continue reading
IEP
As you’ve probably noticed, it’s been a while since I wrote anything here. I learned a long time ago, when I used to paint, that creating art works a lot better when you have a vision. When you have an end … Continue reading
Differences
Back around Martin Luther King Day, I had a talk with the kids about discrimination. My kids are lucky in that they have not experienced much discrimination in their lives—even Gracie hasn’t really seen much of the worst of people. Because … Continue reading
Amazing Gracie 