Category Archives: Uncategorized

Mystery Diagnosis

Posted on October 7, 2014 by saussi77

Medicine has always intrigued me. As a child, I would pretend my play horses had elaborate injuries, then cast or splint them like a good doctor. When I was in high school, though, we dissected a cat in my A&P … Continue reading →

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My Girl

Posted on October 2, 2014 by saussi77

It’s so easy to get mired down by the worries that sometimes I forget to talk about all the awesome things that make Gracie amazing. She is such a gift. She has an understanding of the world that far exceeds … Continue reading →

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Arr, Matey

Posted on September 19, 2014 by saussi77

Today is National Talk Like a Pirate Day. Arr, ahoy, shiver me timbers! The kids went all out to celebrate this year – last Saturday, Jackson bit down hard on a Lego and knocked out one of his bottom teeth. … Continue reading →

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Woe is Me

Posted on September 16, 2014 by saussi77

It’s almost midnight. I’m sitting here saying my prayers while crying my eyes out. There are so many people suffering in the world – so many unimaginable horrors, so many people with nothing, so many lost souls. Compared to so … Continue reading →

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Giving the Finger

Posted on September 13, 2014 by saussi77

Gracie gave her doctor the finger, literally and now figuratively as well. She had the tip of her finger amputated last Friday in order to rid the bone of infection. Today, we saw the wound for the first time. The flat … Continue reading →

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White is the New Orange is the New Black

Posted on September 2, 2014 by saussi77

Grace has committed a crime. She was convicted of being too sick to live in the outside world and her sentence is a week-long confinement in a medium-security facility. I was sentenced as the co-conspirator. We are forced to live in … Continue reading →

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The One

Posted on August 31, 2014 by saussi77

This latest hospital adventure has prompted me to think scary and unpleasant thoughts about Gracie’s future. She is barely 4 – she just had a birthday – and antibiotics are failing her. Her latest wicked infection is responding to the medicine, … Continue reading →

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Raw

Posted on August 30, 2014 by saussi77

Raw is the finger wound, rubbed open to the bone. Raw is the reality of another infection not responding to treatment. Raw is the fear for her future. Raw is the fear of her death. Raw is the damp trail … Continue reading →

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Night and Day

Posted on August 14, 2014 by saussi77

We saw Gracie’s usual infectious disease doctor yesterday to follow up from the frustrating appointment with the surgeon Tuesday. As usual, I left feeling like my questions had been answered and Gracie would get help. The doctor thought her finger looked worse … Continue reading →

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Frustration

Posted on August 13, 2014 by saussi77

Gracie had an appointment today with a new doctor, someone we’ve never met before. Ever since she had that MRSA infection in June, her middle finger has been deformed. The redness, streaking, heat, etc. is all resolved, but the tip … Continue reading →

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