Author Archives: saussi77

Fever

You give me fever When you kiss me Fever when you hold me tight Fever in the morning Fever all through the night. I’m wishing I were writing a love song instead of a post about Gracie’s recurring fevers. Alas. … Continue reading

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Appropriate

Today, the United States Supreme Court heard oral arguments in a special education case, Endrew F. v. Douglas County Public Schools. In that case, the Supreme Court is tasked with deciding whether the student, Endrew F., received a free and … Continue reading

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Perseverence

Right before Thanksgiving, Gracie was lamenting that she’d never seen a movie in the movie theater. I had never taken her because it’s dark and loud and requires sitting still for two hours—any one of those things is usually too … Continue reading

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Hot Lunch

Before the school year started, I purchased 10 hot lunches for each of the kids. For whatever reason, though, they didn’t use any of them until this month. One day when I was feeling particularly tired (and it wasn’t election … Continue reading

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Thank you

Hello, dear readers. When I last posted, we were in the throes of a seemingly insurmountable problem – little lemon grenades were coming at us from every direction. I am pleased to report that all the good energy worked. We … Continue reading

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Energy

When life gives you lemons, make lemonade. We all know that, we’ve all heard that adage before. What about, though, when life starts throwing the lemons at you, and they’re actually bombs, and every time they even get near you … Continue reading

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Burned

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading

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3 a.m.

Baby, it’s 3 a.m. and I must be lonely… Whew, what a night! Not in the fun “let’s hook up after a night of drinking” way referenced in the song, either. Gracie was admitted again yesterday. We tried to avoid … Continue reading

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Birthday Girl

Gracie turned 6 a few days ago. We celebrated at home with her favorite dinner—steak, cheesy fiesta potatoes (my homemade version of her favorite Taco Bell delicacy), and strawberries—and enjoyed watching Gracie’s glee as she opened her presents. She didn’t get … Continue reading

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Bridges

Sometimes, you have to stick up for your kid, even if it means burning bridges. We have had a few bridge fires throughout this special needs journey. The first one was probably with the infectious disease department at Children’s Hospital; … Continue reading

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