Category Archives: Uncategorized

Playgrounds

Posted on September 15, 2015 by saussi77

I used to shudder to think of playgrounds. Between Gracie’s ataxia and peripheral vision loss, those tall structures with the mysteriously missing sides were the stuff of nightmares. Not for Gracie, of course — like every kid, she loves playgrounds. … Continue reading →

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The Poop Scoop

Posted on September 6, 2015 by saussi77

It’s been a few days since I’ve written about diarrhea, so I thought I’d publish another post. You’re welcome. Gracie’s birthday party went off without a hitch. It was beautiful and magical — it was everything I hoped it would … Continue reading →

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Cha Cha Cha

Posted on August 29, 2015 by saussi77

I knew when I wrote that last post I was playing with fire — mentioning how Gracie had been hospitalized right around her birthday every year since the year she turned two. True, she doesn’t have a bone infection this … Continue reading →

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Birthday Girl

Posted on August 26, 2015 by saussi77

Today is Gracie’s birthday — she is five years old. She had a great day. We brought cupcakes to school for her, she had steak for dinner (her favorite), and she got lots of cool presents. She was positively blissful. It … Continue reading →

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Lemon Squeezy

Posted on August 18, 2015 by saussi77

Today was Gracie’s first day of kindergarten. My big girl walked into the school, easy peasy lemon squeezy, like she’d been going there for years. If she had jitters she didn’t show them. All her special teachers were there—the special … Continue reading →

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Calgon

Posted on August 12, 2015 by saussi77

We all remember those Calgon commercials, right? About the soothing power of a bubble bath? Calgon doesn’t exist anymore—it’s officially Cal-gone. Anyway. Gracie has had diarrhea since Friday. She’s dirtying dozens of diapers a day and barely faring better overnight. … Continue reading →

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Strong

Posted on August 6, 2015 by saussi77

Last Friday, the kids and I went to a spiritual celebration — Guru Purnima. Jackson played in the toy room for most of the ceremony, but Gracie wanted to be near me and sat by me almost the whole time. … Continue reading →

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Pitter Patter

Posted on July 29, 2015 by saussi77

I read a post on Love That Max recently where the mom wrote she will never get tired of hearing her son talk, because it was something they didn’t know if he would ever do. Those hard-won milestones are never to … Continue reading →

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Sunshine

Posted on July 17, 2015 by saussi77

You are my sunshine My only sunshine You make me happy When skies are grey You’ll never know, Dear, How much I love you. Please don’t take my sunshine away. When I was pregnant with Gracie, I used to sing … Continue reading →

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Happy Fourth of July!

Posted on July 4, 2015 by saussi77

Today, we celebrate our country’s independence. We celebrate our freedoms, our triumphs, our patriotism. But Gracie and I are having a different sort of celebration. We are celebrating the beginning of healing from infection. Gracie is still in the hospital … Continue reading →

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