Category Archives: Uncategorized

Packing

Posted on November 26, 2014 by saussi77

We are going on a road trip tomorrow. We are going to drive to my sister’s house so we can spend Thanksgiving with her family. My parents will also be there – it’s sure to be a great time for … Continue reading →

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Advocate

Posted on November 23, 2014 by saussi77

One of the things about being a special needs parent that you don’t hear about right away is how you have to become your child’s advocate. You know your child best, so you know when something is not right, and … Continue reading →

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Here we go again…

Posted on November 19, 2014 by saussi77

Well, $#!+. We got some bad news today. About a month ago on a Friday, Gracie’s hand mysteriously became swollen. I had put her glove on at 10 am and the hand was fine. I took the glove off at … Continue reading →

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Independence

Posted on November 15, 2014 by saussi77

Yesterday, Jackson asked a question that stopped me in my tracks. While in the car with me and Grace, he asked if Gracie would have to live with me forever. I froze — Grace did, too. I carefully chose my … Continue reading →

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Breakups

Posted on November 12, 2014 by saussi77

I’ve said it before, but this whole thing with Gracie’s former school feels like a bad breakup. Although I’m glad we are no longer dealing with the drama, I’m still reeling from the trauma. I feel sad that it ended, … Continue reading →

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Exercise

Posted on November 8, 2014 by saussi77

As I explain to friends and family my perspective about what happened with Gracie’s school, I am picking apart all my actions, wondering if I did the best thing or the right thing or the wrong thing. And so, as … Continue reading →

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Ballerina

Posted on November 7, 2014 by saussi77

Gracie had her first-ever ballet class today. She worked so hard. She tried to listen and follow directions and do everything the teacher asked of her. She had a helper – it’s the only way she could have done the … Continue reading →

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Hope

Posted on October 31, 2014 by saussi77

It’s been pretty depressing around here lately. I have been dragging along, putting on a good face for the outside world but generally feeling like I could cry at any time, feeling sad and tired, feeling like no one listens … Continue reading →

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Tides

Posted on October 28, 2014 by saussi77

Sometimes, it seems like life is beating us up from every direction. Sometimes, it feels like we’re barely keeping from drowning. Sometimes, it feels like we are drowning – like the waves keep crashing over us but we’re too beaten … Continue reading →

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Heavy

Posted on October 22, 2014 by saussi77

I’ve been remiss in posting, I know. Things have been busy, and hard, and hard to write about. I am fully immersed in the world of special needs parenting, with all the very hard sadnesses and all the surprising sunbeams … Continue reading →

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