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Category Archives: Uncategorized
Amazing Gracie
A few days ago, I took Grace to the ER because her hand was very swollen and red. The swelling was so severe that she got a huge pressure sore from her glove. I debated whether to take her or … Continue reading
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Tagged Amazing Gracie, antibiotics, emergency room, fracture, infection, osteomyelitis, urinary tract infection, uti
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Coding
For my work, I do a lot of file conversion, including converting Word documents to HTML for web viewing. When the file is converted, it frequently comes through with unwanted code, which I carefully parse out of the HTML file. … Continue reading
MRSA is No Joke
How ironic that only two posts ago I discussed superbugs and their potential implications for our medically fragile girl. Grace was admitted to the hospital again two days before we left for our vacation. She had cellulitis again, this time … Continue reading
Blindness
I just read an article in “Good Housekeeping” (yes, I’m like 80) about a woman who lost her eyesight. She doesn’t ever name her eye disease, but she describes its progression, and it’s pretty obvious that she has retinitis pigmentosa, the … Continue reading
Shoes
I love cute shoes. My shoe collection is not nearly as robust as I’d like, but I have several cute pairs of heels and sandals. Little girl shoes are even cuter than grown-up woman shoes. But unfortunately, cute shoes are not really … Continue reading
Superhero
When most people hear for the first time that Gracie can’t feel pain, their initial reaction is a little touch of awe and envy – “Wow, that must be so cool! I would love to not feel pain.” Some even … Continue reading
The Bone or Not The Bone… That is the Question
There is something filling in where that piece of bone fell out. It looks hard and kind of gnarly, perhaps bone, but then again bone is not known to regenerate in humans, and I’m pretty sure she’s not part starfish. … Continue reading
And then this happened…
The bone fell out of her finger. Again. No, it’s not some comical put-the-bone-back-again type thing, more like some terrible infection tore up her bone and made it fall out. This means that her finger will be a little shorter … Continue reading
2nd Hospital Stay of 2014
We are on day 4 of our second hospital stay of 2014, the third stay in 6 months. She has cellulitis again from a bite wound on her finger, the same one that always gets infections. We were supposed to … Continue reading
Amazing Gracie 