Tag Archives: infection

Burned

Posted on September 28, 2016 by saussi77

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading →

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3 a.m.

Posted on September 26, 2016 by saussi77

Baby, it’s 3 a.m. and I must be lonely… Whew, what a night! Not in the fun “let’s hook up after a night of drinking” way referenced in the song, either. Gracie was admitted again yesterday. We tried to avoid … Continue reading →

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Birthday Girl

Posted on September 1, 2016 by saussi77

Gracie turned 6 a few days ago. We celebrated at home with her favorite dinner—steak, cheesy fiesta potatoes (my homemade version of her favorite Taco Bell delicacy), and strawberries—and enjoyed watching Gracie’s glee as she opened her presents. She didn’t get … Continue reading →

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Guts ‘n’ Stuff

Posted on August 9, 2016 by saussi77

We have largely been looking forward to today’s appointment with the gastroenterologist. After three months of a strict gluten-free diet, we were anticipating an appointment where we would tell the doctor that it didn’t work, nothing changed, and could she … Continue reading →

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Of MRIs and Fractures

Posted on July 22, 2016 by saussi77

Right now, Gracie is under anesthesia having an MRI of her spine. She went to sleep quickly and easily, breathing in the Skittles-scented anesthesia while I told her a story. She made it look easy. It’s not easy on us. … Continue reading →

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Dem Bones

Posted on July 1, 2016 by saussi77

Facebook keeps showing me memories of late June hospital stays from the past few years. It’s funny, Grace does tend to be hospitalized at the same time of year over and over again. Last year, it was her knee. We … Continue reading →

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Red Tape

Posted on May 2, 2016 by saussi77

Hello from the hospital. Yep, we’re still here, despite getting the doctor’s okay to go home two days ago. We are still here because insurance company employees don’t work on the weekend. Gracie has had many, many courses of antibiotics … Continue reading →

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This Hospital Life

Posted on April 30, 2016 by saussi77

The times between Gracie’s hospital stays are getting longer and longer. Gone are the days when she spent more time on antibiotics than off. She is getting stronger. Before tonight, the last time she was hospitalized was last September—over seven … Continue reading →

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Sickos

Posted on January 11, 2016 by saussi77

A week before Christmas, I took Gracie to the ER because she had a 105.4 degree fever. The ER doc did blood work and tested Gracie’s urine but didn’t find a source for the fever. Then, a few days later, … Continue reading →

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The Story, Part 2

Posted on January 10, 2016 by saussi77

A long time ago, I wrote “The Story She Hates to Hear Me Tell” about how we figured out Gracie couldn’t feel pain. I never wrote the rest of the story, though, and I suppose now is as good a … Continue reading →

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