Tag Archives: hospital

The White Prison

It’s hard to make plans when you have a special needs child. Their diseases are not predictable, so any vacation/date night/concert plans have to be tentative until they actually begin. Many times over these 6+ years, we have had to … Continue reading

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Burned

We parents of special needs kids are frequently plagued by burnout. I just read a post on “Love That Max” today about a special needs mom’s head exploding. It was tongue-in-cheek, but quite appropriate. My head feels explosive today—or maybe it … Continue reading

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3 a.m.

Baby, it’s 3 a.m. and I must be lonely… Whew, what a night! Not in the fun “let’s hook up after a night of drinking” way referenced in the song, either. Gracie was admitted again yesterday. We tried to avoid … Continue reading

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Dem Bones

Facebook keeps showing me memories of late June hospital stays from the past few years. It’s funny, Grace does tend to be hospitalized at the same time of year over and over again. Last year, it was her knee. We … Continue reading

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Red Tape

Hello from the hospital. Yep, we’re still here, despite getting the doctor’s okay to go home two days ago. We are still here because insurance company employees don’t work on the weekend. Gracie has had many, many courses of antibiotics … Continue reading

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This Hospital Life

The times between Gracie’s hospital stays are getting longer and longer. Gone are the days when she spent more time on antibiotics than off. She is getting stronger. Before tonight, the last time she was hospitalized was last September—over seven … Continue reading

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The Story, Part 2

A long time ago, I wrote “The Story She Hates to Hear Me Tell” about how we figured out Gracie couldn’t feel pain. I never wrote the rest of the story, though, and I suppose now is as good a … Continue reading

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Happy Festivus

Today is Festivus, a holiday created by the great Frank Costanza of Seinfeld fame. One great Festivus tradition is the Airing of Grievances, and so I thought that might be a good theme for today’s blog update. I actually feel … Continue reading

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Suckville

I don’t usually write things that are all about me – I’m sure my personality comes through with what I write but mostly I don’t like to share too many of my deep, dark secrets. But today, I’ll break my silence … Continue reading

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Hangover

Gracie was hospitalized again this week. Jackson’s Cub Scout camping trip was last weekend — the boys left from school Friday to drive into the mountains for some freezing cold camping. Gracie and I had a girls’ weekend. Well, we … Continue reading

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