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Category Archives: Uncategorized
Accessibility
Even though Gracie is getting better and better at walking, she still tires fairly easily. It makes sense; her body does not work the way it should, so she has to work harder to do basic things like standing and walking. … Continue reading
Doctors
We got a letter yesterday informing us that one of our very favorite doctors (Gracie’s infectious disease specialist) is no longer at her practice and will now be working at a different hospital with mostly adult patients. My first thought … Continue reading
School
Even though it’s only January, it’s time to start thinking about school for next fall. I wish we had started this early last year—I had no idea the school district personnel were off all summer along with the teachers, so I … Continue reading
Fingers
About 100 times a day, I tell Gracie to get her fingers out of her mouth. Each time I see her chomping on a finger, it makes my heart beat a little faster. She has done some serious damage to … Continue reading
Superstitious
Last year began with a hospital stay. On New Year’s Eve 2013, I took Gracie’s gloves off after daycare and her right index finger was red and swollen. Since she didn’t have a wound on that finger, I thought maybe … Continue reading
Reflections
It was the best of times, it was the worst of times. Or so penned Charles Dickens, anyway. It’s the last day of 2014, and I am reflecting on all the events and happenings of the last year. Gracie had some major … Continue reading
Rudolph
Yes, the red-nosed reindeer. It’s the most wonderful time of the year, and we’ve been enjoying all the old Christmas classics my husband and I grew up with. We especially like the original Rudolph, the story of the misfit reindeer … Continue reading
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Rocks
I read an article on CNN today about five peoples’ experience in this special needs world. Although Gracie is different than all those other kids, there were things in each person’s interview that resonated with me. One of the things that … Continue reading
Sweet Girl
When she’s not overheating or really hungry, Gracie is a very sweet girl. She is a little love. When my parents were in town, she would bring Grandma blankets and pillows to put her feet up on. She did the … Continue reading
Thankful
Thanksgiving is a time to reflect on the things we are grateful for. I have so much – I am grateful for my two beautiful kids and my steadfast husband. I am grateful for our two old dogs and our … Continue reading
Amazing Gracie 